Patient and public involvement (PPI) in clinical research can be defined as research that is carried out with or by patients or members of the public instead of to, about, or for them.1
It means that patients and the public are involved in a research project or initiative as equal partners, for example, by:
- working with research funding organizations to prioritize proposed research projects according to their relevance for those affected by the research
- providing advice on a specific project as a member of a decision-making body
- contributing to research information materials by providing feedback on them or helping develop them.2
1 Involve
2 Swiss Clinical Trials Organization (SCTO)
The DCR is doing research on the most effective way to conduct PPI. Projects are underway and further links here will follow.
